Dr Sarah Evans, Head of Research at CCLG, describes what patient and public involvement (PPI) involves. PPI is about researchers and those who fund research teaming up with people who have personal experience with a health condition. This collaboration helps make sure that research focuses on what really matters to the people it’s meant to help, like patients and their families.
Penelope Hart-Spencer is a Health Play Specialist at the Proton Beam Therapy Centre at the Christie in Manchester and a member of the CCLG. In this role, she supports children undergoing cancer treatment who require CT/MRI scans, radiotherapy and proton beam therapy treatments, as well as other clinical procedures.
Charlotte Hillyard’s daughter, Jess, was diagnosed with a brain tumour in May 2023 aged three. Knowing the importance of peer-to-peer support, Charlotte and her husband, Lee, set up Walking Warriors Essex earlier this year to bring together families of children with cancer to share their feelings and experiences.
Claire Bailey's daughter, Poppy, was diagnosed with stage 4 high-risk neuroblastoma in July 2020 aged four. She writes on how the relationships she’s formed with other families have provided support both during and after Poppy’s treatment.
Following a childhood cancer diagnosis, parents may find relationships with those around them change, while they may also develop a number of new relationships during their child’s treatment. Here, Dr Amandeep Samrai, Consultant Clinical Psychologist in Paediatric Oncology at Nottingham Children’s Hospital, talks about how relationships can be both helpful and challenging during childhood cancer treatment.
Kay Lewis’ daughter, Maisy, was diagnosed with retinoblastoma in both eyes when she was nine months old. Kay explains what helped them after treatment, and how Maisy continues to inspire her.
Skin cancer (melanoma) in teenagers and young adults (TYA) is on the increase and evidence from young people and their families suggest that they feel isolated, alone and unsupported.
Sophie was diagnosed with acute lymphoblastic leukaemia (ALL) in April 2021 at the age of seven. Her mother, Tanya, shares her story.
Today (1 September) marks the beginning of Childhood Cancer Awareness Month (CCAM). This year, in addition to raising awareness of childhood cancer and its signs and symptoms, CCLG is shining a light on research and how, without it, progress in its treatment and care would not be...
