What information do we produce?
Our information covers topics including cancer types, treatments, side effects and supportive care, as well as living with and beyond cancer.
To ensure that our information remains accurate and as helpful as possible for patients and families it is reviewed every three years.
We try to make our information accessible and relevant to the widest range of people. Our publications are available to order or download free of charge. The information for families and patients in the ‘About Cancer’ section of our website follows the same process as our printed publications. Our website has the ReachDeck toolbar to provide speech, reading and translation support tools for people who struggle with reading, have a visual impairment or prefer to read in their own language.
How we produce our information?
The content for all of our resources for patients and families is informed and written with the help of our expert professional members. Our members supply the content and sources. The CCLG information team work with our experts to edit the information resource into easily understandable language and format.
All of our information resources are checked and reviewed by the CCLG information team and our information group, comprising multi-professional experts and people with lived experience in the field of children and young people’s cancer.
CCLG is proud to be members of the Patient Information Forum and to hold PIF TICK accreditation. We were awarded the PIF TICK in December 2020. Our health information was previously certified under The Information Standard, which has now been discontinued.
To gain our PIF TICK accreditation we are assessed every year against ten criteria to ensure we have followed a professional and robust production process to meet the PIF TICK standards for trusted health information.
When you see the PIF TICK on our information resources and website, it shows we have followed the ten criteria below set by the PIF TICK for trustworthy health information:
- Information is created using a consistent and documented process
- Staff are trained and supported to produce high-quality information
- Information meets an identified consumer need
- Information is based on reliable, up-to-date evidence
- Patients are involved in the development of health information
- Information is written in plain English
- Print and digital information is easy to use and navigate
- Users can give feedback on information
- Information is promoted to make sure it reaches those who need it
- The impact of information is measured
Use of AI in our information for patients and families
Artificial intelligence (AI) is a term for a range of technology which attempts to think in the same way that humans do to solve complex tasks. Whilst AI can offer opportunities for efficient working there are also risks from using AI and many people have concerns about how it works and is used.
CCLG is committed to using AI responsibly and transparently.
We do not use generative AI to create our information resources. We expect our expert members and reviewers to follow our AI policy when providing information and support for our information.
We may use AI to support our work process, but we do so carefully. Human checks are always made before sign-off or publication of any information resources.
AI tools may be used to assist in the following ways:
- To help with the editing process, for example to check how easy our information is to read. The CCLG approved AI tool for such tasks is Microsoft Copilot. Where we use AI tools, it is always part of a process which includes one of our team members checking the output of the AI tool.
- AI search results may be used when initial research is carried out to produce information sources. Information from any AI search results must always be investigated to determine and validate the source of the information and reference this.
- Translation of webpages and publications, via the ReachDeck toolbar which uses Google translate. All publication pages carry a disclaimer to explain that the translation is machine generated and has not been checked for medical or cultural differences.
Information resources relating to cancer in children and young people.
Our expert information helps children and young people and everyone supporting them, to navigate the challenges of cancer and its impact, offering reassurance and clarity when it is needed most.