News & Updates

Kay Lewis’ daughter, Maisy, was diagnosed with retinoblastoma in both eyes when she was nine months old. Kay explains what helped them after treatment, and how Maisy continues to inspire her.

Today (1 September) marks the beginning of Childhood Cancer Awareness Month (CCAM). This year, in addition to raising awareness of childhood cancer and its signs and symptoms, CCLG is shining a light on research and how, without it, progress in its treatment and care would not be...

Samuel Priestley was 14 years old when diagnosed with pilocytic astrocytoma in 2018. After almost four years of intense treatments and operations, Samuel passed away in February 2022, aged 18.

Life was turned upside down for us and Samuel’s two brothers when we were told he had a brain tumour. The tumour was removed in a long operation, but a few days later, we were given the devastating news that it was cancer. Soon after, we found out that it had spread and that there was another spot of disease elsewhere in his brain, making his condition high-risk of relapse after treatment, rather than the standard risk we were originally told.

Aashna first showed signs of cancer when she started limping as she walked down the stairs at school. For an active and healthy child, it seemed okay. But what followed was a month of progressive loss of mobility, day by day. She began crying at school, taking naps after coming home, and complaining of bone pains even while standing. We dismissed her symptoms as tiredness and growing pains, too busy and hopeful that she’d get better.