Current information parents receive

There is a wealth of information widely available to patients and families.  Families are usually given information from the centre they are diagnosed in. This may include information specific to the treatment centre as well as general information about undergoing treatment. These are sometimes called ‘family held records’ or ‘family information files.’ 

Information specific to the disease and treatment is given to patients and families at the appropriate time, usually by the Consultant or the Paediatric Oncology Outreach Nurse Specialist (POONS). The Young Lives vs Cancer Social Workers also give families  information on emotional, social, financial and practical support.

Understandably, families  often turn to the internet for information. Advice is available about how to assess the information families find on the internet. CCLG provides a publication to help with searching for information and support online.

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Last updated November 2025