Download the resources
Patient tools
User guide
Printed copies
To order full-colour print copies, please email info@cclg.org.uk and let us know:
- The number of copies requested
- Name
- Delivery address
Printing/photocopying guidance: It is much better for the family experience to have good quality print copies from CCLG than to have poor quality black and white print versions, or badly photocopied versions. Thank you for considering.
How to use the tool
The form can be completed before an X-ray appointment and shared with healthcare professionals involved in planning and delivering care. See the user guide below in the downloads sections for people helping a child or young person complete the form.
Children and young people with cancer, families and caregivers may find it helpful to share the form:
- when an X-ray or scan is requested
- during appointment planning
- when arriving in the radiology department
- with radiographers before the procedure begins
The form can be updated whenever needs or preferences change.
"This is me! When I visit radiology" is a simple communication tool designed to help children, teenagers and young adults share information that can help healthcare teams provide more personalised support during X-rays and other radiology visits.
The tool helps people tell healthcare professionals:
- how they prefer to communicate
- what causes distress or anxiety
- what reasonable adjustments help
- any mobility or access needs
- what helps when they are upset or overwhelmed
- what is especially important on that day
The tool was developed primarily for children, teenagers and young adults with cancer who have cancer and any combination of the following:
- a learning disability
- autism
- communication differences
- sensory processing differences
- other additional needs that may affect their radiology experience
- Families, carers and healthcare professionals can support completion of the form where needed
Through a national quality improvement project made possible through participation in the NHS Cancer Experience of Care Improvement Collaborative (CIC), families told us that radiology appointments could be particularly challenging.
Common themes included:
- uncertainty about what would happen
- communication difficulties
- waiting and delays
- sensory challenges
- unfamiliar environments
- having to repeatedly explain individual needs to different healthcare teams
These experiences informed the development of this resource. It was co-produced with lived experience partners, learning disability specialists, autism specialists, radiographers and cancer professionals.
Help us improve the resource
We would like to understand whether the resource is helpful in practice.
If you have used "This is me! When I visit radiology" and would like to be involved in the ongoing evaluation, please share your feedback using our survey.
Before you complete the survey, please read the survey information sheet.
The survey will remain open until 31st July 2027.
Feedback from children, young people, families and healthcare professionals will help inform future development of the resource and support wider improvements in care.
Find out more
The project team have written an article for publication. Once this has been accepted by a journal and published, we will place a link to it here. In the meantime, a project summary is offered here
If you require more information, please email Chief.Nurse@cclg.org.uk