NHS England has this week published new ‘service specifications’ for teenage and young adult cancer services in England. These documents outline the standards that are expected in teenage and young adult cancer services, including in Principal Treatment Centres and Designated Hospitals.
We are delighted to welcome our new TYAC Chair Liz Purnell, Lead Nurse for Teenagers & Young Adults with Cancer for South Yorkshire, North Lincolnshire, and North Derbyshire, and Executive member Hanna Simpson, Lead Nurse for Teenagers & Young Adults with Cancer, Ambulatory Care and Withington Unit at The Christie NHS Foundation Trust.
On 23 April 2024, the TYAC Professional Education Group is running a session aimed at helping staff better understand the experiences of young people with cancer as part of Children's Cancer and Leukaemia Group's (CCLG) Annual Conference.
The purpose of this section is to give you the knowledge you need to help your child: how you can recognise pain, some information about different types of pain and what you and your nurses and doctors can do to try to relieve pain.
Dr Wendy McInally, who leads Teenagers and Young Adults with Cancer (TYAC)’s first research project, hosted an event last month at the Royal College of Nursing which brought together survivors, clinical specialists and key stakeholders with experience of melanoma to inform the next steps of her research.
A biobank is a store for cancer samples which are then released for research studies. Professor Deb Tweddle, Director of VIVO Biobank, Professor of Paediatric Oncology and Honorary Consultant at Newcastle University and Newcastle Hospitals, and Dr Mariya Geneshka, Research Associate at the University of York, tell us more about donating samples for biobanking, and its importance to improving treatment and care.
Raysa Farah’s son, S’aad, was diagnosed with leukaemia aged two. Here, she explains how her and S’aad’s experiences during his treatment inspired her to write a children’s book, empowering both her and other young children with cancer.
Emily Baker, clinical research nurse at Great Ormond Street Hospital (GOSH) and CCLG member, tells us about her career so far, the most rewarding part of her job, and more.
Teifi Rowley was diagnosed with cancer as a baby and again a few years later. They tell us about Anniben, a drag character they created that has helped them process the long-term impact of treatment through creativity and performance.
Dr Claudia Heggie is a paediatric dentist at the University of Leeds and Leeds Teaching Hospitals Trust. She’s been leading research looking at the use of photobiomodulation, a light treatment, to prevent a side effect of chemotherapy called mucositis, and how it can be best introduced in other children’s cancer centres.
