child's eye with white circle showing signs of retinoblastoma

Retinoblastoma Awareness Week

Retinoblastoma Awareness Week is an annual campaign to raise awareness of Retinoblastoma, a rare eye cancer that predominantly affects children under six.

What is Retinoblastoma Awareness Week?

Retinoblastoma Awareness Week is held every year to raise global awareness of retinoblastoma, a rare form of eye cancer that affects young children. The campaign aims to promote early detection of the disease

When is Retinoblastoma Awareness Week?

This year, Retinoblastoma Awareness Week will be held from May 9–15.

What is Retinoblastoma?

Retinoblastoma is a rare and fast-growing malignant eye tumour that develops in the retina. It only affects babies and young children, typically under the age of six; because of this, it's important to spot the signs and symptoms. Early diagnosis can save a child’s life, eyes, and vision.

Everything you need to know about retinoblastoma

Retinoblastoma is cancer of the retina, the light-sensitive lining of the eye. It usually affects children under five but treatment is very effective and nearly all (98 out of 100) children with retinoblastoma are cured.

Majlinda Lako, sat in her office and wearing a black blouse and blue necklace, with her dark hair in a ponytail.

More than meets the eye – how research is finding kinder treatments for retinoblastoma

While almost all children diagnosed with retinoblastoma survive, there is still an urgent need for safer and more effective treatments that can save lives and eyesight.

Little girl with blue coat and pink hat with retinoblastoma and her little brother

Our son helped us during his sister’s retinoblastoma treatment

Colette Robinson-Mellor's daughter, Hollie, was diagnosed with an eye cancer, called retinoblastoma, aged 13 months in 2024.

How CCLG supports those affected by cancer

At CCLG, we bring together the children and young people’s cancer community. Our network of dedicated professional members work together in treatment, care and research to help shape a future where all children with cancer survive and live happy, healthy and independent lives. We fund and support innovative world-class research and collaborate, both nationally and internationally, to drive forward improvements in childhood cancer.