60 seconds with Nicky Webb
Nicky Webb is a Clinical Nurse Specialist and a member of CCLG who provides support for the long-term follow-up care of childhood cancer survivors.
BRAIN
A CCLG-funded study to find out why some patients with leukaemia have long-term problems with learning and memory.
“Seek out additional help and be open about how you’re feeling”
Shane Gunby was diagnosed with a brain tumour aged 15 in 2012, leaving him with several long-term side effects. He explains how this has impacted him in the workplace, and what a difference proper support from employers can make to young people navigating the world of work after cancer.
The many faces of children’s and young people’s cancer care
During cancer treatment, children and young people (CYP) and their families will meet, and receive care from, a wide range of healthcare professionals. Mostly, these will be their consultants or clinical nurse specialists, but there are many others who will provide wider, and pivotal, support. We hear from three such people about their roles.
Ask the expert with Jeanette Hawkins and Jo Stark, Chief Nurses at CCLG
Jeanette Hawkins and Jo Stark, Chief Nurses at CCLG, share tips on preparing for your child's medical appointments.
60 seconds with Hafsa Karim
Hafsa Karim is a Speech and Language Therapist specialising in paediatric and adolescent oncology at UCLH and a member of CCLG. Here, she shares more about her role in working with children and young people with cancer.
Investigating how DNA communicates with cancer-causing genes
Dr Lisa Russell at the University of Newcastle is leading a £100,000 research project, funded by Ruby’s ‘Live Kindly, Live Loudly’ Fund (CCLG). The study aims to identify key interactions between super-enhancers and proto-oncogenes that drive T-cell acute lymphoblastic leukaemia.
Creating a good practice guideline for communicating with young people with cancer
Nurse Debbie Critoph and Dr Luke Smith are healthcare professionals and researchers in clinical communication in young people with cancer. Here, they tell us about how they developed good practice guidelines to help peers effectively communicate with teenagers and young adults (TYA) with cancer to engage them in the level of communication they need.
Social media: Finding the right balance for you
Mandy Berriman's son, Peter, was diagnosed with neuroblastoma in January 2019 when he was eight years old. She tells us how using social media to find information and connect with other families both helped her and presented challenges during Peter’s treatment.