CCLG funds new rhabdomyosarcoma research, thanks to Special Named Funds
CCLG funds new rhabdomyosarcoma research, thanks to Special Named Funds.
Building a good relationship with your child's doctor during treatment
The relationship between oncologists and parents of children with cancer can be complex and unique, with each family having differing needs. Dr Ren Manias, Consultant Paediatric Oncologist at Southampton General Hospital and Contact's medical adviser, tells us how open and honest communication between doctors and parents is key to developing trust and understanding, and why this is important.
Me, myself and I
Sophie Hartley was eight years old when diagnosed with bone cancer in 2005. Now 27, she explains how this affected the relationship she has with herself.
What is patient and public involvement (PPI) in research?
Dr Sarah Evans, Head of Research at CCLG, describes what patient and public involvement (PPI) involves. PPI is about researchers and those who fund research teaming up with people who have personal experience with a health condition. This collaboration helps make sure that research focuses on what really matters to the people it’s meant to help, like patients and their families.
Uniting young people with shared experiences
Teens Unite Fighting Cancer brings together teenagers and young adults living with cancer and its lasting effects. Its CEO, Roxanne Lawrance, explains how surrounding yourself with others in a similar situation can often be helpful during cancer and in the years that follow, and how Teens Unite helps young people do this.
How a walk-and-talk group is supporting families of children with cancer
Charlotte Hillyard’s daughter, Jess, was diagnosed with a brain tumour in May 2023 aged three. Knowing the importance of peer-to-peer support, Charlotte and her husband, Lee, set up Walking Warriors Essex earlier this year to bring together families of children with cancer to share their feelings and experiences.
A parent’s view... Why there’s so much value in parent-to-parent support
Claire Bailey's daughter, Poppy, was diagnosed with stage 4 high-risk neuroblastoma in July 2020 aged four. She writes on how the relationships she’s formed with other families have provided support both during and after Poppy’s treatment.
Relationships and childhood cancer
Following a childhood cancer diagnosis, parents may find relationships with those around them change, while they may also develop a number of new relationships during their child’s treatment. Here, Dr Amandeep Samrai, Consultant Clinical Psychologist in Paediatric Oncology at Nottingham Children’s Hospital, talks about how relationships can be both helpful and challenging during childhood cancer treatment.
Appreciating every moment
Kay Lewis’ daughter, Maisy, was diagnosed with retinoblastoma in both eyes when she was nine months old. Kay explains what helped them after treatment, and how Maisy continues to inspire her.