Brain and spinal cord tumours - a guide for parents and carers
Published: Oct 2025
Next review: Oct 2028
This guide has been written with the help of experts and parents. It aims to help parents and carers following their child's diagnosis, and gives specific information about brain and spinal cord tumours, including treatment, possible side effects
and rehabilitation.
If your child has only just been diagnosed, there may be information in this booklet that has not yet been discussed with you by the medical team looking after your child. This guide gives a general overview of brain and spinal cord tumours that occur in children and young people, and will act as a helpful reminder for any discussions you have with your child’s treatment team.
You can order free physical copies of this publication by adding it to the cart, or you can download the digital version.
How this resource was made
This edition reviewed by Dr John-Paul Kilday (Consultant Paediatric Oncologist and Chair of CCLG Neuro-oncology Special Interest Group), Dr Nicky Thorp (Consultant Clinical Oncologist), Professor David Walker (Professor of Paediatric Oncology), Professor Barry Pizer (Consultant Paediatric Oncologist), Helen Paisley, (Neuro-oncology Clinical Nurse Specialist), Dr Sophie Thomas (Consultant Paediatric Neuropsychologist), Dr Emily Bennett (Paediatric Neuropsychologist) on behalf of the CCLG Information Advisory Group comprising parents, carers, survivors and multiprofessional experts in the field of children and young people’s cancer. Thanks also to the families who have contributed to this review.
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