We are CCLG: The Children & Young People’s Cancer Association, a charity dedicated to creating a brighter future for children and young people with cancer. Powered by expertise, we unite the children and young people’s cancer community, driving collective action and progress.
Louise Robinson, Neuro-Oncology Outreach Nurse Specialist at East Midlands Children’s and Young Persons’ Integrated Cancer Service, tells us about educational support for young brain tumour patients.
Research project: Access to and experience of education for children and adolescents with cancer: a scoping review consultation exercise
Kerry Brown, mum to Felix who was diagnosed with acute lymphoblastic leukaemia (ALL) in 2016, explains how her family navigated the challenges of Felix’s education during treatment
Mr Robert Wheeler, Consultant Neonatal & Paediatric Surgeon at Southampton Children’s Hospital whose main interest is children’s cancer surgery, tells us how his passion for watercolour painting helps educate and inform families about procedures.
Parents of children who have been diagnosed with cancer often have many questions surrounding schooling and education. Lucy Gwynne, Neuro-Oncology Lead Cancer Nurse Specialist at Birmingham Children’s Hospital, explains more about what to expect.
Going back to school can be scary for both you and your child, but it’s important for their mental wellbeing. It helps them to feel ‘normal’ and lessens the isolation and loneliness which many children with cancer face. It gives structure to their day, a focus on the future and is where they can learn and develop social skills and make friends.
Penelope Hart-Spencer, Health Play Specialist at The Christie Hospital, tells us about the development of ‘Anna loses her hair’. The award-winning CCLG publication helps educate children on hair loss during cancer treatment.
Dr Vikki Langford, Clinical Psychologist at Birmingham Children’s Hospital, explains some of the factors involved in making decisions and offers advice and guidance on the process.
Alexander Clarke was diagnosed with a soft tissue sarcoma aged 19, meaning he was old enough to make his own treatment choices. His mum Denise describes how he helped lessen their worries by involving them throughout, even when there were no further treatment options left for him.
