Ellie Philpotts was diagnosed with Hodgkin lymphoma in 2011 aged 15. She explains how she found support from other young people with cancer and how, through awareness raising, writing and advocacy work, she’s hoping to help those who are newly diagnosed.
Defining the molecular landscape of paediatric and adolescent acute leukaemia in Tanzania
Jake Andrade was first diagnosed with leukaemia as a 13-year-old, before relapsing aged 19. Now 21, he tells us about the goals he set to help him through his second treatment and recovery, and how he has published a book to help other young people with cancer
The Little Princess Trust (LPT) forges important partnerships with other charities, such as CCLG, to further children’s cancer research. Its Chief Executive Phil Brace tells us how the LPT has come together with Cancer Research UK to help more young people access clinical trials.
Paediatric Clinical Psychologist at Birmingham Children’s Hospital & CCLG member
Supportive care is an area of children’s cancer care that has progressed significantly in recent decades. Dr Bob Phillips and Dr Jess Morgan, members of CCLG’s Supportive Care working group, explain just some of the ways it has improved to help patients and their families cope with their disease and the treatment of it.
LATCH Welsh Children’s Cancer Charity supports children and young people with cancer and their families who are under the care of the Children’s Hospital for Wales. As it celebrates its 40th anniversary, LATCH’s CEO, Menai Owen-Jones, reflects on its achievements over the past four decades.
Nicky Webb, is a clinical nurse specialist for the long-term follow-up of survivors of childhood cancer at the East Midlands Children and Young Person's Integrated Cancer Service. She is also a CCLG member and plays an active role in CCLG's specialist Late Effects Group.
First formed to establish clinical trials in childhood cancer, research has always been an integral part of CCLG’s work. Ellie Ellicott, CCLG Research Communications Executive, tells us more about its research journey and how the experiences of those that matter the most are helping shape future directions.
