What are three key components of sibling support?

There’s no ‘one-size-fits-all’ approach to supporting siblings of children and young people with cancer. There are, however, key components of support that can make a big difference to siblings, which we’ve established through listening to the voices of siblings* themselves.

Having someone to talk to

The first essential component of sibling support is having someone to talk to and check in with, whether a healthcare professional, school staff member, friend, or family member. Siblings may withhold their feelings and experiences to protect their immediate family – it’s therefore important for siblings to have a place where their thoughts, feelings and experiences can be heard, held and validated.

This supporting individual should be someone who the young person feels safe to talk to, and who is available regularly to provide a consistent, supportive space. This could be inside or outside of school, or in a club or activity that the young person attends regularly. It’s paramount that this space is made consistently available after treatment finishes, which often represents another big life adjustment for siblings.

Siblings can experience significant physical and emotional separation from their families during cancer treatment. Making time to intentionally engage in an activity with siblings, in which you're fully present and connected with them, may support with this. This can look like many things depending on the sibling’s preferences, but might include things like reading together, going for a walk, building or making something, crafting, or having a meal together.

Dr Amy Savage, Dr Sarah Punton and Dr Lara Felder, Clinical Psychologists at Southampton Children’s Hospital

Access to information

Having access to age-appropriate information about their unwell sibling’s care is another key protective factor for siblings. Due to individual differences, it’s most helpful to ask them what they already know, what they want to know, how much they want to know about it, and who they want to hear it from. Where possible, ask the young person how they’d prefer to receive the information (a conversation, a book or leaflet, a trusted website etc). 

Withholding information from young people about their sibling’s care, even when coming from a place of wanting to protect them, often increases anxiety for them. Encourage siblings to ask questions (there are no silly questions!) and try to talk openly and honestly in age-appropriate language, within the boundaries of what the young person wants to know.

Balancing normality with reality

Everyone copes differently. Some young people find grounding themselves in ‘normality’ provides a temporary relief at a time of great disruption and turbulence in their lives. This might look like being distracted and keeping busy, increasing family time, visiting friends, going to school and engaging in interests and activities. For others, they may wish to be actively involved in the ‘doing’, to combat feelings of helplessness. This might look like involvement in fundraising, taking on caring roles, or asking for ‘jobs to do’. 

It’s important to support and encourage young people to continue engaging in things they enjoy, while still enabling time and space to talk about what's happening in the family. This can prevent siblings feeling ‘shut out’ from the realities of cancer. Lastly, where possible, support young people to visit their unwell sibling, or have some form of regular contact with them (video calls, for example), if they’re receiving care in hospital.

  • Dr Sarah Punton’s research

    *This article is based on the voices of those who have contributed to Dr Sarah Punton’s research thesis, ‘Young people’s experiences of sibling cancer treatment’.

    Read the research

From Contact magazine issue 111 | Summer 2026

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I’ve learnt so much about the quiet strength of siblings

Elizabeth’s daughter, Sarah, who also has Down syndrome, was diagnosed with leukaemia in 2016, aged 15. Here, she tells us how her youngest daughter, Hannah, then eight, provided support to her sister, and about the challenges of balancing family life while a child is on treatment.

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