Why we chose to enter a clinical trial
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
The Children’s Cancer Priority Setting Partnership (PSP) aims to identify gaps in research and ‘unanswered questions’ on children’s cancer by including patients and parents. Susie Aldiss, Prof Faith Gibson and Dr Jess Morgan, of the project team, explain more.
We published our first Research Impact Report this year to celebrate CCLG's progress towards finding a cure for children's cancer. As readers of Contact magazine, we are delighted to share extracts from this report in this 4-page supplement for Contact readers.
Professor Bruce Morland is a recently retired paediatric oncologist from Birmingham Children’s Hospital. Here, he tells us about his work as a chief investigator on a global clinical trial.
Saskia Wells was diagnosed with a brain tumour, aged 16. Now 18, she tells us about being one of the first patients in the UK to receive one-to-one exercise therapy support through the Active Hospitals project, funded by Public Health England and Sport England, at Sheffield Children’s Hospital.
As part of Cat Macleod’s role as a Young Lives vs Cancer social worker, she helps families plan and access trips and holidays while their child is on treatment. She explains the positive impact these breaks can have, and things to consider beforehand.
Dr Amandeep Samrai, Consultant Clinical Psychologist in Paediatric Oncology at Nottingham Children’s Hospital, writes on the impact that a childhood cancer diagnosis can have on emotional health and wellbeing. She offers tips on self-care and coping strategies, and explains where to access support.
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‘Make a Move!’ is a dedicated sports and activities day organised for children and young people who have been treated for cancer and blood disorders, under the care of Bristol Children’s Hospital. Kate Millar, paediatric physiotherapist at Bristol Royal Hospital for Children, tells us more.
60 seconds with Abu Sidhanee, children's physiotherapist and CCLG member