Nurse Debbie Critoph and Dr Luke Smith are healthcare professionals and researchers in clinical communication in young people with cancer. Here, they tell us about how they developed good practice guidelines to help peers effectively communicate with teenagers and young adults (TYA) with cancer to engage them in the level of communication they need.
Yami Moloteni was diagnosed with Hodgkin lymphoma in July 2021 aged 18. She explains the importance of good communication in teenage cancer care, what it looks like, and how having someone to talk to can have a huge impact on young people with cancer.
Ellie Philpotts was diagnosed with Hodgkin lymphoma in 2011 aged 15. She explains how she found support from other young people with cancer and how, through awareness raising, writing and advocacy work, she’s hoping to help those who are newly diagnosed.
Sarah Dransfield was diagnosed with bone cancer in March 2012 aged 16. Here, she tells us what helped her during and after treatment and how cancer has changed her outlook on life.
Sophie Hartley was eight years old when diagnosed with bone cancer in 2005. Now 27, she explains how this affected the relationship she has with herself.
Kay Lewis’ daughter, Maisy, was diagnosed with retinoblastoma in both eyes when she was nine months old. Kay explains what helped them after treatment, and how Maisy continues to inspire her.
Charlotte Hillyard’s daughter, Jess, was diagnosed with a brain tumour in May 2023 aged three. Knowing the importance of peer-to-peer support, Charlotte and her husband, Lee, set up Walking Warriors Essex earlier this year to bring together families of children with cancer to share their feelings and experiences.
Caroline Cleaver is a proton beam liaison nurse at Manchester Children’s Hospital and CCLG member, whose twin sister was diagnosed with leukaemia when they were 19 years old. She tells us how this inspired her career in children’s cancer nursing and what helps her build relationships with patients and families under her care.
Skin cancer (melanoma) in teenagers and young adults (TYA) is on the increase and evidence from young people and their families suggest that they feel isolated, alone and unsupported.
