Appreciating every moment
Kay Lewis’ daughter, Maisy, was diagnosed with retinoblastoma in both eyes when she was nine months old. Kay explains what helped them after treatment, and how Maisy continues to inspire her.
Kay Lewis’ daughter, Maisy, was diagnosed with retinoblastoma in both eyes when she was nine months old. Kay explains what helped them after treatment, and how Maisy continues to inspire her.
Skin cancer (melanoma) in teenagers and young adults (TYA) is on the increase and evidence from young people and their families suggest that they feel isolated, alone and unsupported.
Diffuse midline glioma is a devastating brain tumour, affecting primarily young children. There’s currently no cure for this disease and treatment options are limited. This is mainly because this type of tumour is well-protected from drugs by the ‘blood-brain barrier’. This barrier physically blocks all medications from entering the brain. Our group has developed new methods of bypassing this barrier using focused ultrasound.
Lily Morris was diagnosed with acute lymphoblastic leukaemia (ALL) in 2022 aged 15. Now 16, she tells us about its impact on her GCSE preparations, and the support she’s received from her school and friends as she transitioned back into full-time education.
Lauren Bryce’s son, Alfie, had just begun his final year of school when he was diagnosed with leukaemia, aged 15. Here, she tells us about their struggles with the education system after his diagnosis and what could have helped him as he prepared to take his GCSEs.
Charlotte Bowling's daughter, Amelie, was diagnosed with acute lymphoblastic leukaemia (ALL) in June 2019 aged six. Charlotte tells us about the support her daughter and her family received from her school, including an innovative way of ensuring Amelie was involved even when not physically present.
Gail Beaumont, a dedicated hospital teacher at Sheffield Children’s Hospital, shares insights into her unique role in providing education and support to young patients during their hospital stays.
Sophie Barclay was 15 when diagnosed with a brain tumour, making schooling and exams difficult. Now 18, she tells us how, with the support of her school, she has received a conditional offer for university.
Ruby Abramow was first diagnosed with a rare head and neck cancer aged nine, before relapsing in 2019, when she was 14. Now 19, she tells us how a new, supportive environment gave her the fresh start she needed to take back control of her disrupted education.