60 seconds with Emily Baker
Emily Baker, clinical research nurse at Great Ormond Street Hospital (GOSH) and CCLG member, tells us about her career so far, the most rewarding part of her job, and more.
“Writing gave me something to focus on”
Raysa Farah’s son, S’aad, was diagnosed with leukaemia aged two. Here, she explains how her and S’aad’s experiences during his treatment inspired her to write a children’s book, empowering both her and other young children with cancer.
Donating cancer samples for research
A biobank is a store for cancer samples which are then released for research studies. Professor Deb Tweddle, Director of VIVO Biobank, Professor of Paediatric Oncology and Honorary Consultant at Newcastle University and Newcastle Hospitals, and Dr Mariya Geneshka, Research Associate at the University of York, tell us more about donating samples for biobanking, and its importance to improving treatment and care.
The importance of involving parents in shaping research and resources for families
Helen Pearson, Advanced Nurse Practitioner in solid tumours, researcher and CCLG member, explains how the findings of a study have helped co-design an important new web resource to support families.
Building a good relationship with your child's doctor during treatment
The relationship between oncologists and parents of children with cancer can be complex and unique, with each family having differing needs. Dr Ren Manias, Consultant Paediatric Oncologist at Southampton General Hospital and Contact's medical adviser, tells us how open and honest communication between doctors and parents is key to developing trust and understanding, and why this is important.
Me, myself and I
Sophie Hartley was eight years old when diagnosed with bone cancer in 2005. Now 27, she explains how this affected the relationship she has with herself.
What are young people and their significant others’ experiences of melanoma?
Skin cancer (melanoma) in teenagers and young adults (TYA) is on the increase and evidence from young people and their families suggest that they feel isolated, alone and unsupported.
What is patient and public involvement (PPI) in research?
Dr Sarah Evans, Head of Research at CCLG, describes what patient and public involvement (PPI) involves. PPI is about researchers and those who fund research teaming up with people who have personal experience with a health condition. This collaboration helps make sure that research focuses on what really matters to the people it’s meant to help, like patients and their families.
It's the little acts of kindness that can make the difference
Kelly Scott was diagnosed with non-Hodgkin lymphoma when she was a teenager in 2001. Now working for Teenage Cancer Trust, she explains how this affected her relationships with her peers and how some simple acts of kindness helped support her.