BRAIN
A CCLG-funded study to find out why some patients with leukaemia have long-term problems with learning and memory.
A CCLG-funded study to find out why some patients with leukaemia have long-term problems with learning and memory.
Many parents will feel huge levels of stress as they try to figure out how and if they can continue to work and care for their child through treatment. Andrew Whitehouse, Service Manager at Young Lives vs Cancer, tells us what legal rights you have and how employers can support you.
Sian Brown’s son, George, was diagnosed with stage 4 neuroblastoma in April 2019 when seven months old. Here, she explains how she gave up work to care for George and the financial implications of this, and how volunteering work led her back into employment helping other families of children with cancer.
Shane Gunby was diagnosed with a brain tumour aged 15 in 2012, leaving him with several long-term side effects. He explains how this has impacted him in the workplace, and what a difference proper support from employers can make to young people navigating the world of work after cancer.
Jeanette Hawkins and Jo Stark, Chief Nurses at CCLG, share tips on preparing for your child's medical appointments.
Hafsa Karim is a Speech and Language Therapist specialising in paediatric and adolescent oncology at UCLH and a member of CCLG. Here, she shares more about her role in working with children and young people with cancer.
Dr Lisa Russell at the University of Newcastle is leading a £100,000 research project, funded by Ruby’s ‘Live Kindly, Live Loudly’ Fund (CCLG). The study aims to identify key interactions between super-enhancers and proto-oncogenes that drive T-cell acute lymphoblastic leukaemia.
Nurse Debbie Critoph and Dr Luke Smith are healthcare professionals and researchers in clinical communication in young people with cancer. Here, they tell us about how they developed good practice guidelines to help peers effectively communicate with teenagers and young adults (TYA) with cancer to engage them in the level of communication they need.
Mandy Berriman's son, Peter, was diagnosed with neuroblastoma in January 2019 when he was eight years old. She tells us how using social media to find information and connect with other families both helped her and presented challenges during Peter’s treatment.