Carrie Wright’s daughter, Lucy, was diagnosed with neuroblastoma in August 2018. She writes on participating in the international MiNivAN clinical trial and offers advice to others faced with making decisions about their child’s treatment.
Helen Pearson and Katie Johnson, co-chairs of the National Neuroblastoma Nursing Group (NNNG), tell us more about how they have developed a range of animation videos to help parents make decisions about their child’s treatment as part of a neuroblastoma clinical trial
Katy Jones' daughter Eden was three years old when she was diagnosed with leukaemia in July 2017. She explains some of the things her family considered before deciding on entering into a clinical trial.
Lauren Murrell was diagnosed with leukaemia aged 23. She tells us how her experiences inspired her into business with her sister to help others get back to themselves through wellness products.
When Beth Kellie’s son Kai was diagnosed with leukaemia, she struggled to maintain her mental and physical health while adjusting to life during his treatment. She writes on how she learnt to look after her own wellbeing and the importance of doing so.
Clinical Psychologist at Royal Belfast Hospital for Sick Children (RBHSC) talks to us about her work.
The Ellen MacArthur Cancer Trust supports young people aged 8-24 in rebuilding their confidence after cancer through sailing and UK-wide adventure activities. Scott Wilson, Communications Officer at the Trust, explains the positive impact these trips have on wellbeing.
In an effort to improve the physical and mental health of young people diagnosed with or treated for a brain tumour, the ACT Now study (funded by The Brain Tumour Charity), is investigating whether a psychological therapy called ‘acceptance and commitment therapy’ (ACT) is both useful and possible.
Matteus Irsø-Coombes, Community Fundraising Coordinator at CCLG, was diagnosed with leukaemia aged 24. He tells us how his outlook on life has been altered by his cancer journey and how talking about his experiences has helped him mentally.
