After Anna's oldest daughter was diagnosed with leukaemia, she decided to get involved with the Childhood Cancer Priority Setting Partnership. Together with childhood cancer professionals, survivors, and patients, she helped identify the research questions that matter most to children, young people and families.
Two leading childhood cancer charities – CCLG: The Children & Young People’s Cancer Association and Solving Kids’ Cancer UK (SKC) – have joined forces to launch Engage: The Children & Young People’s Cancer Lived Experience Platform, a first of its kind national initiative designed to ensure that the voices of children, young people and families affected by cancer drive meaningful change across the sector.
Louise Bennett shares the story of her son Fred and her experience as a member of our Patient and Public Involvement Group. She explains how her involvement in shaping CCLG's research has enabled her to make a lasting difference for children and young people with cancer in the future.
A man is taking on a fundraising challenge throughout September in honour of his fiancée who is undergoing treatment for blood cancer after being diagnosed last year when she was just 21.
We ask the Clinical Psychologist what resilience really means during cancer treatment and share practical ways to protect your well-being.
We speak to the Complementary Therapy Nurse Specialist at Nottingham Children’s Hospital
While standard chemotherapy and rituximab cure 95% of children with Burkitt lymphoma, current treatments carry severe side effects and relapses. Researchers are using different technologies to develop targeted drugs that improve cure rates for relapsed cases.
The first meeting of the new National Cancer Board takes place on 21 September, with CCLG Chief Executive Ashley Ball-Gamble as the lead for children and young people's cancers.
Jasmine Jones is Head of Operations at Latch Welsh Children's Cancer Charity. She tells us how Latch supports families in Wales to carry the weight of a childhood cancer diagnosis with its bespoke emotional, practical and financial support.
