Ashlee's Neuroblastoma Appeal at CCLG is raising funds to support neuroblastoma research.
In February 2013, our daughter Ashlee Easton, then aged 6, started complaining about pain in her abdomen and pain down her legs. Initially the doctor suspected a food intolerance and it was thought she had pulled a muscle at her acrobatics class. However, within a few days she was admitted to hospital in terrible pain where doctors suspected she had appendicitis. If only.
After a week of watching and running a few tests we were no further forward and we were transferred to Yorkhill Children's Hospital in Glasgow. Tests were to reveal that our daughter had stage 4 neuroblastoma, an illness we didn't even know existed!
From that point onwards we found an inner strength and held on to hope that we could get our daughter through what was to follow. Ashlee endured almost a year of chemotherapy including Rapid COJEC, TVD and then the BEACON trial, which eventually cleared her bone marrow.
In January 2014 surgeons managed to remove 100% of her abdominal tumour. In February 2014 she then went on to receive a stem cell transplant, followed by 6 months of immunotherapy, which was the hardest part of her treatment. At one point she ended up in intensive care due to the combination of infection and the effects of immunotherapy. It was a very scary time and not one we would like to experience again.
In December 2014, Ashlee completed her treatment with radiotherapy andour daughter was finally free of disease!
From then on Ashlee kept well, she was thrilled to have her lovely hair back, she enjoyed being back at school with her friends and loved to go out to play on her electric scooter.
In July 2016 we were devastated when routine scans revealed our gorgeous girl had relapsed. How can life be so cruel after everything she had come through? Ashlee has now started treatment and she has lost her lovely hair again. As parents all we can do is keep strong, have hope and pray that she can beat this again.
For anyone who would like to do something to help, please do. Please support us by helping to raise money for neuroblastoma research. We need to find kinder treatments and most of all a CURE, and we need your donations to get us there, no matter how small. If you can do anything to help, we would be extremely grateful. Thank you so much.
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You can make a donation by cheque, payable to CCLG, and sent to us at this address. Please ensure you make it clear that the donation is for Ashlee's Neuroblastoma Appeal so that your donation is allocated to the correct fund.
You can also make a donation by text message.
Text CCLG 5 ASHLEE to 70300 to donate £5.
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