Tumour specific organisations
Adam Dealey Foundation
A non-profit charity dedicated to helping sufferers and families affected by Ewing’s Sarcoma.
Link: http://www.adamdealey.org.uk | Region: National
American Brain Tumour Association
American non-profit organisation supporting research into brain tumours and providing Information and support for those affected by brain tumours.
Link: http://www.abta.org | Region: International
Anthony Pilcher Bone Cancer Trust, The
Aims are to raise awareness of osteosarcoma, offer support to patients and their families and raise money for research.
Link: http://www.apbonecancertrust.org.uk | Region: National
Bone Cancer Research Trust
Promotes research into the causes and treatment of Primary Bone Cancer, and improving the outcomes for patients.
Link: http://www.bonecancerresearch.org.uk | Region: National
Brain Tumour UK
Works to support brain tumour patients, their families, friends and carers through making connections, providing information and funding research.
Link: http://www.braintumouruk.org.uk/ | Region: National
Childhood Eye Cancer Trust
Charity supporting families affected by retinoblastoma.
Link: http://www.chect.org.uk | Region: National
Children with Leukaemia
Charity dedicated to funding research into the causes of childhood leukaemia and supporting families.
Link: http://www.leukaemia.org/ | Region: National
Chris Lucas Trust, The
The Chris Lucas Trust was established to raise sufficient funds for a Scientific Researcher and to encourage and support high quality research into Rhabdomyosarcoma, (a very aggressive cancer).
Link: www.chrislucastrust.com | Region: National
Ethan Perkins Trust, The
Set up in memory of Ethan Perkins, the Trust aims to raise funds for research, support and awareness into childhood brain tumours.
Link: http://www.theethanperkinstrust.org.uk/ | Region: National
European Action Against Rare Cancers
European Action Against Rare Cancers has been established as a partnership of cooperating organisations that work together to place the issue of rare cancers firmly on the European policy agenda, to identify and promote appropriate solutions and to exchange best practice.
Link: http://www.rarecancers.eu | Region: International
Friends of O.S.C.A.R
National charity providing help and support to children with brain and spinal tumours, and their families.
Link: http://www.friendsofoscar.org.uk/ | Region: National
HeadSmart
National campaign to raise awareness of symptoms of brain tumours in children and young people.
Link: http://www.headsmart.org.uk | Region: National
Histiocyte Society
American society dedicated to improving the lives of patients with histiocytosis through research into the causes and treatment of this disease.
Link: http://www.histio.org/hs | Region: International
Histiocytosis Research Trust
Charity promoting research into histiocytosis.
Link: http://www.hrtrust.org/web/guest/home | Region: National
Katie McKerracher Trust, The
Charity set up in memory of Katie McKerracher to provide practical advice and some financial assistant to patients and families dealing with a diagnosis of diffuse pontine glioma.
Link: http://www.katiemckerrachertrust.co.uk | Region: National, Scotland
KrystleSmith.org
Aims to raise awareness of Ewing’s Sarcoma and assist affected families by providing information and useful links.
Link: http://www.krystleSmith.org | Region: Ireland (Éire)
Leukaemia & Lymphoma Research
UK charity dedicated exclusively to researching blood cancers and disorders including leukaemia, Hodgkin’s and other lymphomas, and myeloma.
Link: http://www.llresearch.org.uk/ | Region: National
Leukaemia Busters
A UK Children’s leukaemia research charity.
Link: http://www.leukaemiabusters.org.uk | Region: National
Leukaemia Care
Charity providing care and support for all affected by leukaemia, lymphoma, myeloma and allied blood disorders.
Link: http://www.leukaemiacare.org.uk/1/home.html | Region: National
Leukaemia Society, The
The Leukaemia Society (UK) is dedicated to ensuring that more people with leukaemia survive, have the best possible quality of life and that their families and carers get the support they need.
Link: http://www.leukaemiasociety.org/ | Region: National
Lymphoma Association
Charity providing emotional support and information to anyone with lymphatic cancer and to their families, carers and friends.
Link: http://www.lymphoma.org.uk | Region: National
Mark Cross Bone Cancer Fund
Charity set up to help finance research into bone cancer and raise public awareness of the disease.
Link: http://homepages.which.net/~pear.tree | Region: National
Neuroblastoma Society
Funds research into causes of neuroblastoma and provides support to affected families.
Link: http://www.nsoc.co.uk | Region:
Rhabdomyosarcoma
A website for parents and families whose children have been diagnosed with rhabdomyosarcoma giving access to a booklet about the condition.
Link: http://www.rhabdomyosarcomabooklet.org.uk | Region: National
Samantha Dickson Brain Tumour Trust
Samantha Dickson Brain Tumour Trust funds scientific and clinical research into childhood and adult brain tumours, and offers support and information to patients and their carers.
Link: http://www.braintumourtrust.co.uk | Region: National
The Shona Smile Foundation
Offers support to children up to 18 years old suffering primarily from rhabdomyosarcoma
Link: http://www.shonassmile.org | Region: National
William Doolin Fund
In tribute to 10 year old William Doolin, this website aims to raise awareness of medulloblastoma and provides information about research into this type of brain tumour.
Link: http://www.williamdoolin.com | Region: National
Wilms at Home
Website by families for families affected by Wilms tumour living in Europe.
Link: http://www.wilmsineurope.net | Region: International, National